The final installment of Partnership Manager Louise Timmins’s blogs from Nepal, where she visited Anandaban Hospital last month, meeting some of the people whose lives have been devastated by the earthquakes. Towards the end of her visit she met Pavitra, who benefited from a new house thanks to The Leprosy Mission last year.
The Self Care Unit at Anandaban Hospital is where patients affected by leprosy learn how to soak hands and feet which have lost feeling because of disease, remove dead skin and moisturise with oil. This is so important because soaked, supple skin is less likely to crack and injure. Injuries can turn in to horrendous ulcers which take months to heal. Sadly in some cases, the ulcers become so infected that amputation is the only option.
As I walked down the 360 steps from the hospital to the Self Care Unit, I could see eight or nine patients sitting and chatting together. It is fantastic that they can share experiences and encourage one another here. Only someone who has experienced leprosy first hand can really understand the horrors of the disease.
Pavitra had just soaked her feet and was having the dead skin removed by Kassi, who is also affected by leprosy and manages the Self Care Unit. We started chatting and Pavitra told me her story:
“I was sixteen when I first noticed I was losing feeling in my hands,” she said. “It was very strange and I didn’t understand what was happening. I was scared so I just ignored it and tried to hide what was happening from my family and friends.
“Luckily my parents found a husband for me and we got married. I kept the secret of my illness from my husband, but when we had a son a year later, I couldn’t hide it anymore. By this point my hands were almost useless; my fingers wouldn’t straighten and I didn’t feel it when my son grasped them. I kept burning myself when preparing meals. It was terrible. I felt so sad all the time.
“My husband was so angry – he realised I had leprosy. He threw me and our son out of the house. I was disgraced – I am from a low caste, and with leprosy too I knew I didn’t have much of a future to look forward to.
“Thankfully my mother took us in. I’m an only child and she was so good to me.
“I now live with my son and his family – I have five grandchildren so it’s a busy household. My son also ran a tailoring business from the house until recently.”
Despite the support of her family, Pavitra has faced new challenges following the earthquake at the end of April.
“When the earthquake came we lost everything,” she told me. “Thankfully no-one apart from my daughter-in-law was inside the house – she jumped out of the upstairs window to safety. Our home is gone and our income from my son’s business has gone. We are desperate.
“I feel very sad about losing my home; it was only built by The Leprosy Mission last year. I was so excited when we moved in. I’d never had a toilet in 57 years – it was wonderful! Now I wonder what will happen to us.
“We’re living in a tent; it’s really hard to manage in such a small space, especially when it’s raining.
“I am thankful for The Leprosy Mission; they treat me like family when I am here. It’s almost like coming home. I hope that God will provide me with a house for my family again. I don’t know how we will manage otherwise.”
The Leprosy Mission Nepal is currently looking at plans to start rebuilding homes destroyed by the earthquake early next year. We value your prayers as we do so and hope we will be able to partner with other organisations in Nepal to transform the desperate situations of people like Pavitra.